I can’t believe it’s been about 5 months since Miss Teenage Canada 2015. I would like to start off by saying congratulations to the winner Sarah Wojcik! MTC was such an amazing experience that I will never forget and I met so many amazing girls. Today I received the video of the final night and it made me miss everyone so much! Also a huge thank you to Christi and Michelle for making MTC one of the most memorable weeks of my life.
I’ve been very busy these past few months which is why I haven’t had time to write. When I came back from MTC it hit me hard coming home to see that my mother with Trigeminal Neuralgia wasn’t getting any better and was still suffering. For those of you who don’t know, Trigeminal Neuralgia is a rare, debilitating neuropathic disease which affects your Trigeminal Nerve (it carries sensation from your face to your brain).
What happens is, a vein or artery grows and presses on the Trigeminal Nerve which causes the worst pain known to man kind. The disease causes constant chronic pain but sets off attacks of violent pain which can be triggered by anything. Something as simple as walking, talking, noise, sunlight, kissing, eating, brushing your teeth…etc (almost anything you would do in your daily life). Imagine living a life where you were only able to sit in a dark room screaming and crying because the pain is so bad and unable to do anything to stop it.
” The human body can withstand 45 del units of pain before collapsing. During childbirth, 57 del units is suffered. That’s like 20 bones being broken at once. Trigeminal Neuralgia will inflict up to 90 del units of pain during an attack. This is why it’s called the most painful condition known to man kind.”- Wendy. B
My mother has lived like this for the past 3 years and it was time to do something about it. There is no cure for Trigeminal Neuralgia (A.K.A the suicide disease because people who are diagnosed often take their own lives because the pain is so horrific), however there are treatments, surgeries and medication that have controlled the pain. BUT! Each case is different, some are more severe than others. My mother has Trigeminal Neuralgia in 5 divisions and is a rare case… nothing helps to ease the pain. She has tried pretty much everything…One morning I woke up to the sound of her screaming and crying and I couldn’t keep watching her live like this. SOOOO, I jumped on my laptop and made a video to share her story with the world, hoping to help find a cure and raise awareness for TN. I posted it on YouTube without her even knowing and within a day she had over a 2,000 views!
The feedback from the video was incredible, people who are suffering as well got to contact my mother to share their story, also we got tons of support from people all over! CTV News saw the YouTube video I made “Trigeminal Neuralgia, Aprils Story” which was circling around social media and asked to interview me. It was such an awesome opportunity and I’m so grateful for being able to spread awareness for TN and my moms story. Google search CTV News Devastating Disease to see it!
On October 7th, it was Trigeminal Neuralgia Awareness day and social media blew up with pictures with the hashtags #trigeminalneuralgia #fightforapril #aprilsstory …etc. There were people from all over Canada wearing teal (the awareness color for TN)!! Check out the facebook page I made to see the mini video clip of everyone wearing teal that day & for fundraiser information. Facebook search: Trigeminal Neuralgia, Aprils Story
The following week family and friends from Killarney Ontario put on an amazing fundraiser for my mom! There were Indian tacos being sold, a penny sale table, yardsale, TN awareness bracelets and T-shirts & MORE! It was so touching to see an entire community get together to support her.
We then received the SUPER EXCITING news that a neuro surgeon in the United States could help my mom get her life back by doing another brain surgery! So I began fundraising……:) On November 15th I organized Valley Vendors Winter Edition with Julie Perreault and a couple of my friends. It turned out to be a huge success. We had over 35 vendors, Santa meet and greet, candy ka-bobs, pizza, drinks, popcorn, huge door prize, face painting, kids craft table and more!
My next fundraiser to help raise funds for my mom to go to the United States for her brain surgery is called Rally For April! On January 8th 2016 at the Caruso Club we will be having a buffet dinner, silent auction and a performance by our very own local country singer and song writer Larry Berrio! Check out the facebook event Rally For April if you’re interested in purchasing tickets to go.
During my spare time (which there isn’t a lot of) I’ve been doing a ton of homework, working at a beautiful dress shop ” Nelia’s Designer Fashions”, local fashion shows, photo-shoots….etc
I also participated in the Santa Clause Parade with my Miss North Ontario Gals and Today I applied for college and university for nursing (OMG)! I am so excited! I would like to become a pediatric nurse someday. Can’t wait to see what my future holds! Thanks for reading 🙂
-Chelsey, Miss Teenage Valley East xoxo
“Once you become fearless, life becomes limitless”